{"id":1035,"date":"2010-11-03T09:33:38","date_gmt":"2010-11-03T09:33:38","guid":{"rendered":"https:\/\/blogs.nature.com\/spoonful\/2010\/11\/nih-to-launch-genetic-testing-registry-next-spring.html"},"modified":"2010-11-03T09:33:38","modified_gmt":"2010-11-03T09:33:38","slug":"nih_to_launch_genetic_testing","status":"publish","type":"post","link":"https:\/\/blogs.nature.com\/spoonful\/2010\/11\/nih_to_launch_genetic_testing.html","title":{"rendered":"NIH to launch genetic testing registry next spring"},"content":{"rendered":"<p><strong>Cross posted from Nature&#8217;s <a href=\"https:\/\/blogs.nature.com\/news\/thegreatbeyond\/\">The Great Beyond<\/A> blog.<\/strong><\/p>\n<p>A public, online <a href=\"https:\/\/oba.od.nih.gov\/gtr\/gtr.html\">registry<\/a> providing information on the hundreds of available genetic tests is set to launch this coming spring, US National Institutes of Health (<span class=\"caps\">NIH<\/span>) officials said at a public meeting in Washington DC this afternoon. But many of the details \u2014 such as what information it will include \u2014 have yet to be determined.<\/p>\n<p>The <span class=\"caps\">NIH<\/span> first publicly announced plans to create such a registry in <a href=\"https:\/\/www.nature.com\/news\/2010\/100324\/full\/464470a.html\">March<\/a>, though the idea had been circulation for at least a year. Exactly what the agency will do has been an active topic of discussion in a growing industry.<\/p>\n<p><span class=\"caps\">NIH<\/span> director Francis Collins began the meeting by outlining some things that the registry would not do. Many in the genetics community have pushed for the registry to be mandatory rather than voluntary, but Collins gave a definitive \u201cno\u201d to such hopes today. Also, he said, \u201cto be honest, it would take resources beyond our means\u201d to review data in the registry to ensure it is accurate.<\/p>\n<p><em><a href=\"https:\/\/blogs.nature.com\/news\/thegreatbeyond\/2010\/11\/nih_to_launch_genetic_testing.html\">Read the rest of the post on The Great Beyond<\/a>.<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Cross posted from Nature&#8217;s The Great Beyond blog. A public, online registry providing information on the hundreds of available genetic tests is set to launch this coming spring, US National Institutes of Health (NIH) officials said at a public meeting in Washington DC this afternoon. But many of the details \u2014 such as what information it will include \u2014 have yet to be determined. The NIH first publicly announced plans to create such a registry in March, though the idea had been circulation for at least a year. Exactly what the agency will do has been an active topic of&nbsp; <a href=\"https:\/\/blogs.nature.com\/spoonful\/2010\/11\/nih_to_launch_genetic_testing.html#wpn-more-1035\" class=\"more-link\"> &hellip; Read more<\/a> <a href=\"https:\/\/blogs.nature.com\/spoonful\/2010\/11\/nih_to_launch_genetic_testing.html\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":40,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5],"tags":[],"class_list":["post-1035","post","type-post","status-publish","format-standard","hentry","category-policy"],"_links":{"self":[{"href":"https:\/\/blogs.nature.com\/spoonful\/wp-json\/wp\/v2\/posts\/1035","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blogs.nature.com\/spoonful\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blogs.nature.com\/spoonful\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blogs.nature.com\/spoonful\/wp-json\/wp\/v2\/users\/40"}],"replies":[{"embeddable":true,"href":"https:\/\/blogs.nature.com\/spoonful\/wp-json\/wp\/v2\/comments?post=1035"}],"version-history":[{"count":0,"href":"https:\/\/blogs.nature.com\/spoonful\/wp-json\/wp\/v2\/posts\/1035\/revisions"}],"wp:attachment":[{"href":"https:\/\/blogs.nature.com\/spoonful\/wp-json\/wp\/v2\/media?parent=1035"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blogs.nature.com\/spoonful\/wp-json\/wp\/v2\/categories?post=1035"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blogs.nature.com\/spoonful\/wp-json\/wp\/v2\/tags?post=1035"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}