At Scientific Data we have been considering how we might develop our scope and editorial policies to better accommodate clinical research data. Publication of clinical research presents a number of challenges, which we will not be the first to have attempted to solve. In particular, we might need to support linking of our primary article type, the data descriptor, to non-public datasets – datasets that cannot be open access due to patient privacy or other legitimate constraints. While we advocate setting the default for research data to open, we are also conscious that full anonymisation of clinical data is often impossible to achieve with certainty. Continue reading
Trialling a pragmatic approach to clinical data disclosure
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Anne Schöler
