Guest post by James Beck and Paul Zimmet, Parkinson’s Disease Foundation.
Many scientists, as evidenced by recent discussions, appreciate the value of an open access journal – the convenience of being able to immediately and freely access the latest articles, for example, and the value in a freer exchange of scientific ideas. But what may be less obvious is why this matters to the community served by the Parkinson’s Disease Foundation (PDF) – the patients whose lives are directly impacted by the advances and disappointments in Parkinson’s disease research.
Just two months ago, when the PDF announced its partnership with Nature Publishing Group (NPG) in launching npj Parkinson’s Disease, both communities were on our minds. Our primary goal of working with NPG is to create a home where the best science about Parkinson’s disease can be gathered in one place for all to read and freely shared. But equally important to PDF is the goal of empowering the Parkinson’s community to be a part of the research that will ultimately solve their disease.
People with Parkinson’s disease, or any chronic condition, need to be well-informed about their own disease in order to fight it effectively. But how can you do that when most people do not have direct access to the latest research on the disease?
PDF believes that open access can help to change that. In this way, open access is the right thing to do for the patient community. But even more compelling, we would argue that it is the effective thing to do … because it can accelerate Parkinson’s research.
This has been our experience working with our network of more than 200 PDF Research Advocates. They (including one of the authors of this blog) can directly attest to the effectiveness of this patient engagement approach.



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